Bianca X!

Bianca eats, sleeps and poops



that time of year again, here’s the latest addition to the Rob & B album ūüôā

another great year at Blythedale Children’s Hospital / WCBS FM fundraiser

Photos and videos at

thanks to all who make this happen every year

Filed under : cdls,photos,updates
By kp
On December 17, 2016
At 9:47 am
Comments : 0

Family portrait


Filed under : art,cdls,photos
By kp
On January 17, 2016
At 4:13 pm
Comments : 0

Rainbow colored pencil hearts


Filed under : art,cdls
By kp
On December 30, 2015
At 5:35 pm
Comments : 0

B’s Top 10

  1. Changing her mind
  2. Singing
  3. Dancing
  4. Salami
  5. Drink
  6. Changing her mind
  7. Swimming
  8. Boys
  9. Youtube
  10. Tracing

List subject to change

Filed under : cdls,updates
By kp
On December 29, 2015
At 11:33 pm
Comments : 0


Ooh posting via my phone, woot woot!  

Filed under : art,cdls
By kp
On December 22, 2015
At 10:04 pm
Comments : 0

We’re still here!

Well it’s been a long time…glad I can still log in to post!

B is in 3rd grade (special ed) and is doing super well. She is reading, writing and doing math. ¬†Singing and dancing are what she loves best. ¬†And going to the annual Blythedale concert fundraiser¬†so she can meet her favorite Rob Thomas for our¬†annual photo! ¬†Here’s a compilation of photos throughout the years. We’re on our 7th year, woo! ūüėÄ ¬†This is now¬†one of our Christmas traditions ūüôā

And we made it on to News 12!


Now that I’ve logged in again, hopefully more posts coming. ¬†B loves to draw as well so you’ll be seeing lots of those.

Happy Holidays!

Filed under : cdls,photos,updates,video
By kp
On December 20, 2015
At 1:11 pm
Comments : 0

CdLS Awareness Day Today!

Learn a little more about CdLS today at

Thanks to Ingrid and the foundation for organizing today’s regional meet up. ¬†We are very lucky to only have to travel 20 minutes while others take a few hours each way for a chance to connect with other families in person.

And the foundation also has a great new logo!

new logo!

Filed under : cdls,updates
By kp
On May 10, 2014
At 10:18 pm
Comments :1

Imperfect Teeth

oh yeah, almost forgot about the major dental work B had. ¬†Cavities were out of control. ¬†Despite all the holes, B didn’t really show signs that she was hurting. ¬†However it was time to get her teeth under control so she went under anesthesia and had her top 4 front teeth pulled, a couple in the back we think, root canal, and lots of silver crowns. ¬†We have been brushing her teeth more diligently now even though it is quite the battle each time. ¬†Singing our toothbrush song and counting to 20 helps, along with her random helpers in the morning like cookie monster, toilet paper roll, gopher, fred & ginger, etc…


Let's go dentists, doctors and nurses!

Let’s go dentists, doctors and nurses!

Filed under : cdls,photos,updates
By kp
On March 16, 2014
At 3:51 pm
Comments : 2

B’s EmotiBs

faces by B

Happy, Mad, Scared, Surprised, Sad

B’s drawings are always very compelling!!!¬† She drew these while on facetime with another cdls friend.





Filed under : art,cdls
By kp
At 3:16 pm
Comments : 0

Progress Report

Well B’s making great progress in school. ¬†She can write her own name (first + last), and now learning her 10s in counting. ¬†She counts to twenty but regularly skips the number 13 for reasons superstitious we suppose. ¬†Reading is going nicely, she can read a whole bunch of words now and is able to copy words into her ipad and search the web. ¬†Although that has its hazards!

Behavior wise can use some help.  She can get defiant (wonder where she gets that from?), and refuse to do her work.  She will also deliberately spill or throw things at times, and hit other children.  Working on it!!!  Definitely unpredictable this girl.  Learning how to wait out and go through her spells.

All in all, she is cooking along!

Filed under : cdls,updates
By kp
At 3:13 pm
Comments : 0